My son, Christopher Clarenson, who is 27 was diagnosed with a MPNST Sarcoma on 9-17-17, a very rare cancer tumor, on top of his foot.
The tumor had grown to be 4cm in just 3 months time . Christopher has NF, also know as neurofibromatosis, a type of non-cancerous tumor disorder. So at the time we didn't think anything of this new tumor, until it wouldn't stop growing.
We spent a few weeks going to many different doctors in our area before we was sent to UAMS in Little Rock, AR. We saw an orthopedic oncology surgeon, who recommended Christopher have a biopsy. It came back as a low grade cancer. Two weeks later we had the tumor removed. When the pathology came back, it was high grade MPNST Cancer and they were not able to get any clear margins.
The doctor suggested we did chemo, which would only have a 20% chance to work . Thats when we decided to get a second opinion. We went to MD Anderson in Houston Texas. Which is about 12 hours from our home in AR. Once we got to MD Anderson Sarcoma center, we knew we were in the right place .
They had a team who reviewed his scans and retested the pathology to make sure they were correct. After two weeks of reviewing, They recommended 25 radiation treatments to kill the cancer and then surgery.
We came home for a week while they set it all up and got everything we would need to be there that long. Chris underwent 5 weeks/25 radiation treatments during the months of October and November 2017. I have missed two months of work to take care of him during this time and things are adding up fast ... Christopher will have surgery on January 16, 2018 to remove two of his toes and two metatarsal bones. He will have to be in the hospital for a minimum of 4-5 days after the surgery.
Christopher has been disable all of his life and only has Arkansas insurance which will only cover 80% of his medical care. My husband and I both miss more work. Please help us with anything you can. We greatly appreciate any help you can give.
The Clarensons
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