Laura Wright
Daniel's Journey
Daniel is a 9 yr old little boy who loves football and just about like any normal 9 yr old out there except he got some medical things going on that we are starting our journey to figure it out. When Dan was about 3/4 yrs old he started having what we call episodes but they are like seizures or it looks like he is possessed or being electrocuted. Back when they first started they would happen randomly during the day and sometimes at night. We went to the ER and came back with nothing.. after a few times of repeatedly going to ER they finally sent us to UC Sutter 2 hrs away from home. We spent time there being hooked up to a bunch of wires and testing and they couldnt pick up anything or able to see it personally so they ruled it out as behavior OUTBURTS ... I was pretty mad to be honest and I knew it was not right my gut even told me and they said he will eventually grow out of it and we went home. Well they eventually slowed down and then time went by and realized they hadn't happened in awhile so I said fine maybe they are right maybe it is that.... and then a good 3 yrs went by it seemed like till I noticed they were slowly coming back but this time mostly in his sleep... Ill never forget the night they started happening again big time ....I was dead asleep and a thud noise woke me up followed by a deep almost howel scream coming from my son's room when I got in there he was off his bed on the ground head moving back and forth. Arms out tense and couldn't move him legs were out stiff and he seemed like he could t breath he looked as if something had taken over his body like he was possessed he would look at me dead in the eye and it looked like he wasn't even there like he was outside of his body or somethin I'll never forget when he came to and it was over he just looked at me and asked me what I was doing and why he wasn't in bed. I asked If he knew or remember anything that just happened and he said no I told him and he kinda giggled at me as if he was saying I was crazy.... All I could do was wrap his arms around my neck and hold him legs around me and rock back n forth while what I just seen replay in my head ...they would only happen 1-2 a week maybe and it was scary. Then one day I got a call from the school that they had called an ambulance for my son and explained to me that they thought he had a seizure we were all worried it was the scariest thing to pull up to it kids school seeing the ambulance lights flashing knowing they were there for ur son... I finally reach them and the EMT is going over his vitals with me and explaining few things all while I'm like there but not there I'm just holding my son and in a lost daze but listening to him speaking Daniel's ends up having a few more whole talking with smt and school staff when the EMT tells me it's BEHAVIORAL OUTBURTS again... I was mad and once again telling myself no no it's not it. No one would listen to me ... He would again stop having them like he was for a good 8/9 months til age 8/9 and know it's every night 3/4 times a night ... We finally found a doc who wanted to listen but was leaning more on the behavioral OUTBURTS too until I told him or asked him Then why are they happening in his sleep deep sleep and it got him thinking and concerned enough and got us a referral to a well know. And recognized pediatric neurologist but his office is almost a 100 miles away just one way....
We have an overnight stay coming. Up this week and who knows how many more appointments will have and this mom is stressed even more know because of gas lodging food bills and taking times off work to make these appointments and rent and I'm a single mom which makes it even more difficult and overwhelming and honestly scared I'm going to lose home or anything really.... I'm going to need help I know it so I'm swallowing my pride and turning to the world and asking for help to help my son. I have my other son at home too and this is a lot to do on my own and my car registration is already over do ( just having issues after issue trying to get that fixed ) so worried to loose my car... Im hoping to get answers very soon as it's very emotional and overwhelming to see my kids go threw this and not know what's happening... to see ur kid having his episode and what it entails is breaking me day by day and he just wants to know too. He isn't the same kid anymore and it's actually caused him to become violent and mean. Idk if it's lack of sleep or what but I want help for my son and for him to be happy and loving and sweet as he was before all this took over him. He scared and wants to know too and has even stopped doing things he loves or want to be around ppl cuz he embarrassed or scared it's going to happen and be made fun of and laughed at or it's going to be so bad it scared pple.
I could go on but I'm mentally and emotionally exhausted I just want to not feel so stressed so I can be as normal and not worried all the time and be there emotionally and mentally for my son so if u can help with even a penny it's something and our family would be blessed and appreciative more then ull ever know....
Please share and v please pray For Daniel and our journey ahead ...
Thanks you,
Daniel's Mommy
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