As most of you know, Aracely has SMA. SMA (Spinal Muscular Atrophy) is a genetic neuromuscular disorder that varies in severity and has many symptoms attached to it. Ely received a genetic infusion in the first few weeks of her life to help stop the progression of the disorder and give her a normal chance at life. God's hand has been on her since the moment he created her, and we have seen his hand at work in her life and her disorder.

Part of the treatment of SMA is ongoing medical visits with professionals such as: Neurology, Pulmonology, Physical Therapy, Cardiology, and other medical professions that connect to SMA. Ely has to go to most of these visits at least once a year, if not multiple times a year. At the most recent "SMA Day" where Ely saw all of her medical professionals, it was recommended that Ely start a daily medication that she would take for the rest of her life to better her chances at tasks that seem simple to us, such as: running, walking, gross motor skills, and increasing muscle strength. This medication is 25.5k a MONTH, around 300k a year. The medication manufacturer gave Ely a free year of this medication to start her off, but we do not know what the following years will hold.

This medication is one of the many bills the Pulidos face with Ely's care. Our goal with this fundraiser is to build a sort of Medical Savings Account for Ely, so the Pulidos can pull from it as needed to pay for medical bills and/or the medication in the future.