2025 is in the works to be Savannah's best year yet!!! We are manifesting a joyful year for her. Proceeds in this fundraising effort will go toward current therapy/equipment needs.

As you all know Savannah has a rare disorder called CDKL5. She has many physical limitations and needs a ton of mobility help, medical intervention, specialized care, and support. Her seizures are currently averaging 5 per day and therapies help her to regain abilities that may get lost from setbacks due to seizures.

She is currently on medicaid, but they are very very picky about how many pieces of equipment they will cover.

They also deny us for things regularly. We were recently denied for a sleepsafe bed in-home fire the 2nd time and are in the appeal process. I've been on long search to find something that is used that we can just buy without dealing with another two year headache while Savannah is living on a recliner (because it is the safest option).

They also will not pay for in-home therapies.

Without an accessible vehicle, in home therapy is the only therapy that makes sense for her. Therapy in her natural environment is what is best for her. We are able to apply all of our therapy homework every day with equipment and familiar environment.

We are on waitlists for medicaid facilities that have therapy as well, but there are no local facilities that have the scheduled availability after school hours. Her handicap school does offer some therapies, but not to the level that she really needs.

I have limited support and I'm in over my head with the list of things she needs as well as covering bills and finding care for her so I can work enough to cover all of this. So we are looking to expand community support. Any support you could provide, even if it's only a dollar, every dollar counts.

The more we can raise, the more we can provide for her. Savannah deserves to live her best life supported in every way possible. Thank you, with all my heart, in advance. 🙏

Below is the the list of goal items although I limited this year's goal to a much more realistic value of 5K:

Physical Therapy in home sessions $100 per session ongoing, weekly when we can afford

Future intensives at NAPA therapy (therapy intensives center)...medicaid is not accepted and we are searching for grants but any help is needed, as she is on the waitlist for Spring/Summer Which will be a total cost of 9K.

Peapod chair for in home comfort/safe seating $2,400 (still on our wishlist, carried over from last year)

Sleep safe bed, used $7,000

Carseat for special needs $1,000(medicaid denied Dec 2024)

(Within the next 3 years)Handicapped Accessible Van (used) apx $16,000