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Hello my names Sam and I struggle with chronic illness. I started collapsing when I was 13 after hitting puberty I would completely black out then later on it turned into tunnel vision but now I am fully able to see during these episodes when I fall but unable to speak and have convulsions. It happens with posture changes going from sitting or standing. I can't crouch down or bend down. At the age of 19 when I was pregnant with my son I got a rash covering my butt upper thighs and trunk that wouldn't go away. I tried pills and creams from a dermatologist before giving up and remained polka dotted. I also have invulontary jerking movements from my head, left arm, and chest, I have noticed it happens when my heart rate increases as well as physical touch and sound. I can't stand for long periods of time and lifting my hands up they immediately go numb so I don't brush my hair just throw it in a messy bun as quickly as I can. Did a recent two week heart monitor that shows short periods of tacicardia (50-181hp) I lost my ability to drive until I get clearance and my most recent Dr visit suggest behavioral health. I have a Hard time swallowing pills. And sometimes when I'm talking or yawn my jaw will lock open and the muscle right under my chin will swell for a moment causing intense pain. I'm at a loss for words when it comes to our health system and I just can't win right now. Brushing my hair and doing the dishes shouldnt have me lying on the floor jerking. It shouldn't be this hard.. I have no health insurance as well.. I was giving a parking disability sticker thing for my car for 6months then will be re evaluated. I want to go on disability but I am still undiagnosed. I use a walker with a chair on it so I can sit when I need to and often just find myself going from chair to chair. My bp fluctuates like it's on an emotion rollercoaster it will go up to 150s/120
Or 120s/50s or it will plummet to 90s/40s I also have sleep apnea but due to financial reasons I am unable to keep my machine so I will be giving that back. When asked about a skin biopsy I was declined given histamine and creams. I can't afford any medical bills right now and desperately need specialty drs.
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