Hi I am Claudia, Yatsadi mom.. Recently sadi has been diagnosed with a rare genetic disease called FAVA in her calf, this disease is causing her severe pain and we expect it to get worse until surgery is performed... The fatty tissue in her leg is attacking her bone, but on top of that she has whats called a venous malformation and blood clot. Doctors will not perform any surgeries until her malformation and blood clot is under control because it is to risky for her, what we need is time for it to heal. Mean while her fava is progressing and getting worse. She currently is limping around cry's every night because of pain, cant do very many activities and is really upset she can't participate in many activities at school at only being 8 years old she is limited to many things. With us living in Rock Springs Wyoming  we have been traveling to Salt Lake City until now, since its a rare disease not much doctors are aware of treatments, in 2 week we have to travel to Seattle's Childrens Hospital and in November we have to travel to Boston Childrens Hospital. Any help will help us alot for expensives to and from hospitals and lodging.. I would really appreciate if you kept us in your prayers, and please please share. Thank you very much and god bless you.